As the only national organization uniquely devoted to the Canadian myeloma community, Myeloma Canada works to educate and empower patients, caregivers and healthcare professionals from coast to coast. I appreciate the information sharing and advocacy work of Myeloma Canada.
Recently Canada's myeloma community has undertaken a drive to engage our local elected provincial representatives in conversation about the need for our provincial drug plans to fund the new drugs Kyprolis and Darzalex. Over the past years these two myeloma drugs have received approvals by Health Canada and positive recommendations for funding. On January 31, 2018, it was announced that pricing negotiations for Kyprolis have also been positively concluded.
At this stage, it’s finally up to the provinces and territories to list Kyprolis on their public drug plans so that Canadians can access it. If you live in Canada please write your local MLA/MPP/MNA with a request that they advocate with their Ministry of Health for the funding of Kyprolis on the provincial drug plan. If you visit the Myeloma Canada website and scroll down the page to the section that is in red you will find a tool that will take you to your local provincial representative's contact information. It will also provide you with a sample letter. Thank-you for your help!